Special Matching Gift Opportunity for Year-End IFOPA Supporters

21st Century Cures Legislation Signed by President Obama

On December 7, the Senate followed the House of Representative's lead and signed the 21^st Century Cures bill which is focused on developing treatments and cures for rare diseases; President Obama signed it on December 13. 

Growing our ability to deliver on the IFOPA's mission

Approval of 3 New Sites!

The participation of individuals living with FOP in clinical studies and trials is key to FOP drug development efforts. 

The weekend of November 4, 2016, found members of the FOP community gathered in St. Louis, Missouri

The IFOPA is pleased to announce the three recipients of nearly $108,000 in research grants through its Competitive Research Grants (CRG) Program

This holiday season, it’s easier than ever to give back

The IFOPA hosted the second Drug Development Forum Oct. 24 to 25 in Boston, Massachusetts

Talbots patrons got a jump start on their holiday shopping – all to benefit The IFOPA! 

Thank you to team Addgene who ran the Superhero 5K in Cambridge, Massachusetts in honor of AJ!