Rebecca and Kyle Love their “One Rare Boy”
One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds
Read morePrep Now for Next School Year
Specialized School Plan Tips Shared by Rory Otto
Read moreClementia Announces Preliminary Results of its Phase 2 Trial in Treatment of FOP
An important announcement from Clementia
The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.
Dr. Fred Kaplan To Receive NORD's Rare Impact Award
The National Organization for Rare Disorders (NORD) named Dr. Fred Kaplan among its 2017 honorees.
