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Enroll in the FOP Registry

Posted on IFOPA News by · June 19, 2017 10:11 PM

It’s important to FOP research that everyone who can participate in the Registry enrolls. Nicky Williams explains why she enrolled her daughter.

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"There’s Hope Based in Momentum"

Posted on IFOPA News by · June 19, 2017 1:52 PM

Evelyn Mann “Can do this…”

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FOP Research at the University of Michigan

Posted on FOP News by · June 19, 2017 11:58 AM

IFOPA Board Member, Gary McGuire, and his daughter, Natalie, recently visited Dr. Ben Levi at his lab to discuss the FOP research being performed at the University of Michigan.

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Clementia Announces Symposium at the 8th International Conference on Children's Bone Health (ICCBH)

Posted on FOP News by · June 12, 2017 2:23 PM

An important announcement from Clementia

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FOP Registry Adds Four New Languages

Posted on IFOPA News by · May 08, 2017 2:45 PM

The FOP Registry launched in four more languages - German, Italian, Portuguese and Spanish

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Call for Proposals—IFOPA Competitive Research Grant

Posted on IFOPA News by · May 08, 2017 2:41 PM

The International FOP Association is pleased to announce the 2017 Call for FOP Research Proposals. 

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Grantee Profile

Posted on IFOPA News by · May 08, 2017 2:29 PM

IFOPA and Canadian FOP Network Partnering to Fund FOP Research 

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The IFOPA Pinterest Board Goes Live

Posted on IFOPA News by · May 08, 2017 2:09 PM

Share your tips.

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Rebecca and Kyle Love their “One Rare Boy”

Posted on IFOPA News by · April 19, 2017 11:27 AM

One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds

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Prep Now for Next School Year

Posted on IFOPA News by · April 19, 2017 11:16 AM

Specialized School Plan Tips Shared by Rory Otto

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