FOP Research at the University of Michigan
IFOPA Board Member, Gary McGuire, and his daughter, Natalie, recently visited Dr. Ben Levi at his lab to discuss the FOP research being performed at the University of Michigan.
Read moreClementia Announces Symposium at the 8th International Conference on Children's Bone Health (ICCBH)
An important announcement from Clementia
Read moreFOP Registry Adds Four New Languages
The FOP Registry launched in four more languages - German, Italian, Portuguese and Spanish
Read moreCall for Proposals—IFOPA Competitive Research Grant
The International FOP Association is pleased to announce the 2017 Call for FOP Research Proposals.
Read moreGrantee Profile
IFOPA and Canadian FOP Network Partnering to Fund FOP Research
Read moreThe IFOPA Pinterest Board Goes Live
Share your tips.
Read moreRebecca and Kyle Love their “One Rare Boy”
One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds
Read morePrep Now for Next School Year
Specialized School Plan Tips Shared by Rory Otto
Read moreClementia Announces Preliminary Results of its Phase 2 Trial in Treatment of FOP
An important announcement from Clementia
The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.
Dr. Fred Kaplan To Receive NORD's Rare Impact Award
The National Organization for Rare Disorders (NORD) named Dr. Fred Kaplan among its 2017 honorees.