Emergency Medical Treatment Information
Enroll in the FOP Registry
It’s important to FOP research that everyone who can participate in the Registry enrolls. Nicky Williams explains why she enrolled her daughter.
Read more"There’s Hope Based in Momentum"
Evelyn Mann “Can do this…”
Read moreFOP Research at the University of Michigan
IFOPA Board Member, Gary McGuire, and his daughter, Natalie, recently visited Dr. Ben Levi at his lab to discuss the FOP research being performed at the University of Michigan.
Read moreClementia Announces Symposium at the 8th International Conference on Children's Bone Health (ICCBH)
An important announcement from Clementia
Read moreFOP Registry Adds Four New Languages
The FOP Registry launched in four more languages - German, Italian, Portuguese and Spanish
Read moreGrantee Profile
IFOPA and Canadian FOP Network Partnering to Fund FOP Research
Read moreClementia Announces Preliminary Results of its Phase 2 Trial in Treatment of FOP
An important announcement from Clementia
The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.
Dr. Fred Kaplan To Receive NORD's Rare Impact Award
The National Organization for Rare Disorders (NORD) named Dr. Fred Kaplan among its 2017 honorees.
Regeneron Shares Updates on its Ongoing FOP Research Program
Potentially Promising Treatment for FOP
We are pleased to share a few exciting updates on our ongoing work to help improve the lives of people with FOP.
Read more