Find Us On:
Facebook
Twitter
Instagram
YouTube
LinkedIn
Wikipedia
Emergency medical treatment information
Find an FOP Organization Near You
Donate
Connect
SEARCH
WHAT IS FOP?
WHAT IS FOP?
FOP Symptoms
FOP Skeleton
Misdiagnosis
History of FOP
FOP Faq
Glossary of Terms
|
PATIENTS & FAMILIES
PATIENTS & FAMILIES
Meet Other Patients
Patient Directory and Registry
Managing Your Healthcare
Connecting with the FOP Community
Resources for Support
Ability Toolbox Program
Resilient Living Program
In Remembrance
|
RESEARCH & CARE
RESEARCH & CARE
For Physicians
For Researchers
For Patients
|
GET INVOLVED
GET INVOLVED
Donate to the IFOPA
Fundraise
Shop IFOPA Store
Volunteer
Raise Awareness
|
NEWS & EVENTS
NEWS & EVENTS
IFOPA News
FOP News
Calendar of Events
IFOPA Podcast Series
FOP Family Gathering
In Pursuit of a Cure
Rare Disease Day
FOP Awareness Day
FOP Connection eNewsletter
Media Center
|
ABOUT IFOPA
ABOUT IFOPA
Our Mission
Programs & Services
Leadership
History of IFOPA
Jeannie Peeper Awards
International President's Council
Financials
Contact Us
Pages tagged "FOP"
Interested in Participating in an FOP Research Study?
Posted on
FOP News
by
Merritt Neil
· May 31, 2019 4:58 PM
Blueprint Medicines conducting a one-time research study and looking for volunteers
Read more
A message from the ICC on FOPCon
Posted on
FOP News
by
Merritt Neil
· May 24, 2019 10:43 AM
Posted on behalf of the Clinical Trials Committee of the International Clinical Council on FOP (ICC)
Read more
New Friends of the IFOPA Busy Spreading FOP Awareness
Posted on
IFOPA News
by
Merritt Neil
· April 02, 2019 10:31 AM
"I wanted to know why medical professionals were not aware of such a severe medical condition, despite the fact it is so rare."
Read more
FOP Mouse Model Now Available to Researchers
Posted on
IFOPA News
by
Merritt Neil
· March 20, 2019 2:09 PM
The
IFOPA is pleased to announce that it is now taking requests from researchers worldwide for its FOP mouse model.
Read more
Goal of 20 New Monthly Donors Achieved
Posted on
IFOPA News
by
Merritt Neil
· March 11, 2019 11:14 AM
Together, we did it!
Read more
New FOP Clinical Trial to Begin in Japan
Posted on
FOP News
by
Merritt Neil
· August 02, 2017 5:41 PM
The IFOPA is encouraged to see a clinical trial for FOP beginning in Japan.
Read more
Enroll in the FOP Registry
Posted on
IFOPA News
by
Merritt Neil
· June 19, 2017 10:11 PM
It’s important to FOP research that everyone who can participate in the Registry enrolls. Nicky Williams explains why she enrolled her daughter.
Read more
"There’s Hope Based in Momentum"
Posted on
IFOPA News
by
Merritt Neil
· June 19, 2017 1:52 PM
Evelyn Mann “Can do this…”
Read more
FOP Research at the University of Michigan
Posted on
FOP News
by
Merritt Neil
· June 19, 2017 11:58 AM
IFOPA Board Member, Gary McGuire, and his daughter, Natalie, recently visited Dr. Ben Levi at his lab to discuss the FOP research being performed at the University of Michigan.
Read more
Clementia Announces Symposium at the 8th International Conference on Children's Bone Health (ICCBH)
Posted on
FOP News
by
Merritt Neil
· June 12, 2017 2:23 PM
An important announcement from Clementia
Read more
← Previous
1
2
3
Next →
Learn More
Is it FOP?
Just Diagnosed
Registry
Make a Difference
Donate
Connect
Fundraise
Already a Member?
Sign In
Sign Up for FOP Connection, Our Monthly eNewsletter
Optional email code
Or sign in with
Facebook
or
Twitter
