"I wanted to know why medical professionals were not aware of such a severe medical condition, despite the fact it is so rare."Read more
The IFOPA is pleased to announce that it is now taking requests from researchers worldwide for its FOP mouse model.Read more
It’s important to FOP research that everyone who can participate in the Registry enrolls. Nicky Williams explains why she enrolled her daughter.Read more
IFOPA Board Member, Gary McGuire, and his daughter, Natalie, recently visited Dr. Ben Levi at his lab to discuss the FOP research being performed at the University of Michigan.Read more
An important announcement from ClementiaRead more
The FOP Registry launched in four more languages - German, Italian, Portuguese and SpanishRead more
An important announcement from Clementia
The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.