Preliminary Agenda

**Please note this is a preliminary agenda and session titles and times are subject to change.

Thursday, November 16
10:00 am to 4:00 pm	Pre-Conference Workshop for Adult Siblings of Individuals with FOP (Separate registration required: learn more and register here.)
	English-speaking In-Person Attendees	Spanish-speaking In-Person Attendees
4:30 pm to 6:00 pm	Fun Zone Meet and Greet	Fun Zone Meet and Greet
7:00 pm CST	Welcome to the 2023 FOP Family Gathering Session (Dinner will be served for on-site attendees)
Friday, November 17
9:15 to 10:45 am CST	Insights from FOP Medical Experts and Questions from the Community
11:15 am to 12:30 pm CST	Clinical Trials for the FOP Community
	English-speaking In-Person Attendees	Spanish-speaking In-Person Attendees	Virtual Attendees
2:00 to 3:30 CST	Small-group discussions by personas with icebreaker activities	Small group discussion for spanish-speaking attendees	Community activities: Meet the Researchers: An interactive lab tour with Q&A from researchers at UT Southwestern Self-care Experience Creative Expression Project: Show your artistic side as you decorate a paper leaf electronically to be added to our FOP community tree of strength! Help us all remember how powerful we are when we come together!
4:00-5:30 pm CST	Community activity stations: Meet the Researchers: An interactive lab tour with Q&A from researchers at UT Southwestern Sensory Self-care Stations: Enjoy a hands on opportunity to explore ways to incorporate self-care through your 5 senses! *Parent Talk:* Join a discussion with Dr. Al Freedman, counseling psychologist, bereaved rare dad and leader of the monthly Peer Support Group for adults with FOP. Creative Expression Project: Show your artistic side as you decorate a paper leaf to be added to our FOP community tree of strength! Help us all remember how powerful we are when we come together!	Community activity stations: Meet the Researchers: An interactive lab tour with Q&A from researchers at UT Southwestern Sensory Self-care Stations: Enjoy a hands on opportunity to explore ways to incorporate self-care through your 5 senses! Creative Expression Project: Show your artistic side as you decorate a paper leaf to be added to our FOP community tree of strength! Help us all remember how powerful we are when we come together!	Small-group discussions (Dependant on the number of registrants)
6:30 pm CST	Evening dinner and music	Evening dinner and music	Team Trivia
Saturday, November 18
8:30 to 9:00 am CST	Welcome Back and Recap of Day 1
9:00 to 10:00 am CST	Safety and FOP
10:30 am to 11:45 pm CST	Symptom Management Strategies for FOP
	English-speaking In-Person Attendees	Spanish-speaking In-Person Attendees	Virtual Attendees
1:00 to 2:30 pm CST	Rotating stations: Nutrition and FOP Homemade Tools and Problem Solving Technology as a Tool	Rotating stations: Homemade Tools and Problem Solving Nutrition and FOP Home adaptions and comfort	Series sessions: Laughing Lovebugs Yoga Session: Enjoy the benefits of deep-breathing and endorphins as you laugh your way through this session. Nutrition and FOP
3:00 to 4:30 pm CST	Closing Session: FOP Community Perspectives
4:30 pm CST	Laughing Lovebugs Yoga Session: Enjoy the benefits of deep-breathing and endorphins as you laugh your way through this session. FOP Family Portrait Opportunity	Laughing Lovebugs Yoga Session: Enjoy the benefits of deep-breathing and endorphins as you laugh your way through this session. FOP Family Portrait Opportunity
6:30 pm	Movie and dinner available for those who remain on-site	Movie and dinner available for those who remain on-site

Ancillary Activities (for In-Person Attendees Only)

In addition to the general session, workshop and social event schedule included below the following activities will be taking place throughout the weekend:

Fun Zone and Teen Room
Ask a Doctor and Ask a Dentist Meetings
FOP Biobank Donation Opportunity
Ability Toolbox Tool Room Display

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