Learn More About FOP Diagnosis, Treatment and Clinical Studies & Trials

Several programs offer continuing medical education (CME) credit

Fibrodysplasia ossificans progressiva (FOP) is one of the more than 7,000 rare diseases in the world. Health care providers simply cannot be familiar with every rare disease. We are pleased to connect you to FOP awareness and education programs that you can participate in online. Some of these programs offer continuing medical education (CME) credit.

These programs have been developed and sponsored by other organizations or companies with content provided by FOP experts. You will find the developer and sponsor of each program in the listing below.


Let Their Feet Lead the Way: Tools for Early Identification of FOP
PeerVoice is offering "Let Their Feet Lead the Way: Tools for Early Identification of FOP." The activity comprises two presentations featuring Drs. Richard Keen, The Royal National Orthopaedic Hospital, and Angela Cheung, Toronto General Hospital Research Institute; and Mr. Chris Bedford-Gay, FOP Friends Founder & Trustee and IFOPA Board Member. The presentation includes supporting materials that may be downloaded at any time during the presentation.

PeerVoice provides independent medical education helping physicians acquire new clinical skills, test their knowledge and improve their practice of medicine. This activity on FOP is supported by an educational grant from Ipsen.

Access "Let Their Feet Lead the Way: Tools for Early Identification of FOP"

Springer Healthcare IME

FOP Recognition, Treatment and Hope
Springer Healthcare IME is currently offering an FOP Clinical Diagnosis Quiz. Additional education opportunities will be released in the next several months, including two videos – one on diagnosis and one on treatment plus a webinar. This educational series is supported by an educational grant from Ipsen.

Springer Healthcare IME in collaboration with a global network of scientific experts designs, develops and delivers meaningful education that inspires healthcare professionals to maximize their learning and make measurable change in their own clinical practice. 

Access the FOP Clinical Diagnosis Quiz

Access the "Tin Soldiers Global CME Series on FOP" 

The Tin Soldiers FOP Outreach Program is offering the Global CME Series on FOP, a seven-part video series, for licensed health care professionals. Each session includes a talk by an FOP expert physician. The Series is accredited with the Health Professions Council of South Africa.

Watch this short video to learn more about the FOP clinical experts and the topics they cover in the Global CME Series on FOP.

Access the "Tin Soldiers Global CME Series on FOP"

Access the FOP Treatment Guidelines

Download The Medical Management of Fibrodysplasia Ossificans Progressiva: Current Treatment Considerations

The FOP Treatment Guidelines, authored by the International Clinical Council on FOP, contain detailed medical information and guidelines on the symptomatic management of FOP. In order to continually provide updated guidelines with rapid access to physicians treating FOP patients worldwide, multiple simultaneous translations are not presently feasible. To ensure the widest distribution, guidelines are written in English and are accessible to physicians worldwide.

We emphasize that this report reflects the authors' experience and opinions on the various classes of symptom-modifying medications and is meant only as a guide to this controversial area of therapeutics. Although there are common physical features shared by every person who has FOP, differences among individuals may alter the potential benefits or risks of any medication or class of medications discussed here. The decision to use or withhold a particular medication must ultimately rest with an individual patient and his or her physician.

Access a complete list of FOP Treatment Guidelines authors and consultants. You can access more information on the International Clinical Council on FOP at iccfop.org

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