FOP Awareness Day

International FOP Awareness Day is Thursday, April 23

April 23 – FOP Awareness Day – celebrates the day it was announced that the FOP gene, ACVR1, had been discovered. That announcement was made 14 years ago – in 2006.


There are lots of ways to celebrate International FOP Awareness Day as we celebrate this milestone and come together to #cureFOP.

5 Things You Can Do To Raise FOP Awareness

  1. During the month of April, your gift has TWICE the impact. You'll help educate pediatricians, doctors, specialists and hospitals about FOP and support other mission-critical IFOPA programs. Every size gift matters and every size gift is matched (up to $30,000). Please help the FOP community meet this matching gift challenge by inviting your family, friends and social media circle to give! Have your gift matched at

  2. Make sure you’ve liked all of the IFOPA’s social media channels so you can share FOP facts posted throughout the month. Don't forget to add #cureFOP to all of your posts.

  3. Frame your Facebook profile pic hereChoose from three brand new frames.  

  4. Get FOP-branded gear (hats, sweatshirts, t-shirts, mugs, license plate covers, straws and more) at the FOP StoreAwareness cards (now also available in Spanish) and bracelets can be ordered hereOrder by April 10 to ensure you get your items on time. 

  5. April is the month the worldwide FOP community goes above and beyond to spread FOP awareness. Starting on March 31 the IFOPA is issuing 24 Days of FOP Awareness Challenges and we need your help flooding social media with messaging about FOP.

    You'll change your Facebook profile pic with brand new Awareness Day frames, post FOP facts and stories, wear Team #cureFOP gear and help us raise $60,000 for critical programs and services. You'll even have the chance to send FOP researchers around the world a message of thanks. April is an important month to make a BIG IMPACT!  Each day we'll post the challenges below on social media and in the FOPOnline email group. Don't miss out! 


  • Sunday
  • Monday
  • Tuesday
  • Wednesday
  • Thursday
  • Friday
  • Saturday

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter