FOP Awareness Day

International FOP Awareness Day is April 23

April 23 – FOP Awareness Day – celebrates the day it was announced that the FOP gene, ACVR1, had been discovered. 2021 marks the 15th anniversary of the announcement of the gene discovery.


JOIN US in Raising FOP Awareness During the Month of April

We are still creating ways for you to get involved, but for now:

  1. Get your 2021 FOP Awareness Day t-shirt at

  2. Make sure you’ve liked all of the IFOPA’s social media channels so you can share FOP facts posted throughout the month

  3. Check back on March 22 to see a list of all the ways you can get involved.

Make a Difference

Donate Connect Fundraise
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter