FOP Awareness Day

International FOP Awareness Day is Monday, April 23

IFOPA_shirtdesign_ART2color.pngThe International FOP Association (IFOPA) was founded in 1988 by Jeannie Peeper to connect people living with FOP, but dedicated volunteers quickly began raising money for research.

One of the most important findings of the research work you have helped fund was discovery of ACVR1, the FOP gene. The gene discovery was announced on April 23, 2006; now known as International FOP Awareness Day.

There are lots of ways to celebrate International FOP Awareness Day as we celebrate this milestone and come together to #cureFOP.

Make a Gift

Donate and be a part of raising $60,000 during the month of April for FOP Awareness Day. Two generous donors will match the first $30,000 we raise in April, but we must raise this amount to be eligible for the match. Help the FOP community meet that challenge. 


Spread the Word

Ask others to join you in raising $60,000 by sharing the link or starting a Facebook fundraising campaign. Facebook fundraising is fun and easy to do!

Raise FOP Awareness on Social Media

Host an Awareness Event or Fundraiser

Host an FOP awareness event in your home, place of employment, school or in your community. Contact Sara Brown, Community Fundraising Manager, at for awareness materials. Learn more about how to start your own fundraiser.

Receive a #cureFOP Car Decal

You and your friends can spread FOP awareness all year long. Anyone who donates $20 or more to International FOP Awareness Day campaigns will receive a #cureFOP car decal. Give now!


Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter