Potentially Promising Treatment for FOP
We are pleased to share a few exciting updates on our ongoing work to help improve the lives of people with FOP.Read more
21st Century Cures Legislation Signed by President Obama
On December 7, the Senate followed the House of Representative's lead and signed the 21st Century Cures bill which is focused on developing treatments and cures for rare diseases; President Obama signed it on December 13.Read more
Approval of 3 New Sites!
The participation of individuals living with FOP in clinical studies and trials is key to FOP drug development efforts.Read more