IFOPA Board Member, Gary McGuire, and his daughter, Natalie, recently visited Dr. Ben Levi at his lab to discuss the FOP research being performed at the University of Michigan.Read more
An important announcement from ClementiaRead more
The FOP Registry launched in four more languages - German, Italian, Portuguese and SpanishRead more
The International FOP Association is pleased to announce the 2017 Call for FOP Research Proposals.Read more
One Family’s FOP Journey and How They’re Raising Awareness—and Raising FundsRead more
An important announcement from Clementia
The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.