It’s important to FOP research that everyone who can participate in the Registry enrolls. Nicky Williams explains why she enrolled her daughter.Read more
IFOPA Board Member, Gary McGuire, and his daughter, Natalie, recently visited Dr. Ben Levi at his lab to discuss the FOP research being performed at the University of Michigan.Read more
An important announcement from ClementiaRead more
The FOP Registry launched in four more languages - German, Italian, Portuguese and SpanishRead more
An important announcement from Clementia
The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.
The National Organization for Rare Disorders (NORD) named Dr. Fred Kaplan among its 2017 honorees.
Potentially Promising Treatment for FOP
We are pleased to share a few exciting updates on our ongoing work to help improve the lives of people with FOP.Read more