Services

• The Betty Ann Laue/IFOPA Resouce Center is a central clearinghouse for information about FOP. The Resource Center offers promotional materials, videos and lay and medical articles in several languages. It is located at the IFOPA office in Florida.
• What is FOP? A Guidebook for Families and What is FOP? Questions and Answers for the Children are the first comprehensive resource package written for families dealing with FOP.
• The IFOPA website at www.ifopa.org provides the public with accurate information about FOP, families affected by it, and developments in medical research.
• FOPonline is an online group where people with FOP can discuss their concerns and share their stories. (More information | Guidelines)
• LIFE Committee, "Living Independently with Full Equality", helps people who have FOP find resources and adaptive equipment to increase their independence and quality of life. Read about LIFE and fill out the application form by clicking here.
• PrayforFOPHealing is an online group that gives IFOPA members an opportunity to share prayer requests, inspirational quotes and poems and talk about how faith sustains them.
• FOP Connection is the IFOPA's quarterly newsletter. It features pictures and articles about members, fundraising events, donor acknowledgement, research developments, and suggestions and resources for living with FOP.
• Milestones is a semi-annual newsletter for donors that focuses on research developments.