IFOPA Names Program Manager Serving Patients and Families

The International FOP Association (IFOPA) is pleased to announce Anitha Devadason has been hired for the position of Program Manager serving patients and families.

Anitha-001.jpgAnitha’s hiring comes following a thorough nationwide search conducted by an IFOPA Search Committee including: Danielle Fraser, IFOPA Board Member; Kristi Gonzales, FOP Community Advocate; Amy Gordon, IFOPA Board Vice Chair; Brian Harwell, FOP Community Advocate; Carol Tilley, IFOPA Board Member; and Michelle Davis, IFOPA Executive Director. 

Anitha has worked extensively in health research, grant writing and consulting for medical nonprofit organizations. She brings over ten years of experience in healthcare, and over six years in program management and health research. She earned her Masters of Public Health (MPH) in Health Policy and Management at Johns Hopkins Bloomberg School of Public Health (JHSPH), and her Bachelor of Science in Biology at Fort Hays State University.

Anitha worked with rare diseases and orphan diseases at the Johns Hopkins University School of Medicine in clinical research, including biliary atresia and cystic fibrosis. She helped build relationships among patients and families participating in clinical studies and trials, and connected them with key services and support using a variety of avenues, including social media networks.  

Her time working in an orthopedic clinic, as well as her experience in program strategy and delivery at the World Health Organization (WHO) and Patient Centered Outcomes Research Institute (PCORI), make her especially qualified to serve FOP patients and families. While at the World Health Organization, Anitha helped organize and facilitate the National Action Plan for Hepatitis B. She also wrote the National Strategy on Viral Hepatitis.   

Anitha’s strong international background promises to be an asset to the IFOPA as partnerships and opportunities with other FOP groups around the world increase. She’s skilled in translating complex medical information to different audiences and has a wide breadth of experience as a successful liaison among key groups within the medical community, including researchers, clinicians, patients and pharmaceutical companies.    

Anitha’s experience will help the IFOPA broaden its reach and deliver a wider range of programs and services to FOP families. As the organization moves toward a more global and inclusive model, she will be instrumental in facilitating the exchange of useful information and resources among the FOP community, while maintaining the friendliness and high level of service for which the IFOPA is known.  

Serving patients and families is bigger than one person. While Anitha will serve as the staff lead in serving patients and families, she will work closely with a new Family Services Committee and an expanded team of FOP community mentors to develop, deliver and evaluate programs and services. 

Anitha joined the IFOPA on Monday, October 23 and can be reached at anitha.devadason@ifopa.org or (816) 854-0920.

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