Patient Directory: Coming Soon

Please help us create the most up-to-date online FOP Patient Directory by making sure we have your and your child's (if applicable) most current information. You can also take advantage of the all new opportunity to add your photo, if you like. 

Click here to update your information for the directory

By updating your information, you're ensuring that you don't miss out on: 

  • Your FOP Community Newsletter
  • Your monthly issue of the FOP Connection e-newsletter
  • Connecting with your friends in the FOP community

With your response, we'll send you a package of FOP awareness cards and bracelets to help you educate more people about FOP. Don't miss out...update your information today!

If you have any questions, please contact the IFOPA for assistance.

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