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IPSEN Publishes Results of Phase III MOVE Clinical Trial

Posted by · January 18, 2023 11:06 AM
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LUMINA-1 Phase II Clinical Trial Results Published in medRxiv

Posted by · January 13, 2023 7:20 PM
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Ipsen Receives Complete Response Letter from U.S. FDA

Posted by · December 23, 2022 6:55 PM
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Tell the FDA What It's Like to Live With FOP

Posted by · December 13, 2022 1:17 PM
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Regeneron OPTIMA Phase III Trial Now Recruiting

Posted by · December 09, 2022 6:50 PM
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You Make Our Family Services Programs Possible

Posted by · December 09, 2022 6:49 PM
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IFOPA-funded Gene Therapy Research Published in Nature Communications

Posted by · November 17, 2022 1:17 PM
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Announcement from BioCryst Pharmaceuticals About BCX9250

Posted by · November 01, 2022 7:04 AM
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IPSEN Publishes Burden of Illness Study and Releases Plain Language Summary

Posted by · October 31, 2022 1:12 PM
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FDA Advisory Committee Meeting for Palovarotene Capsules Postponed

Posted by · October 25, 2022 4:23 PM
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