Contribute to the new IFOPA Pinterest Boards

The IFOPA is always seeking out creative and effective ways to connect the FOP community and share useful information with you. That’s why we’re going to develop an IFOPA Pinterest page full of helpful boards with helpful tips and suggestions provided by people with FOP, their families, physicians, clinicians and more.

You can help us get started by sending us your ideas today. Some potential ideas are:

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  • Classroom resources for children, teens or college students
  • Dining modifications for those with limited jaw mobility
  • Travel tips
  • Recipes
  • Your top 5 most helpful adaptations
  • Tips and modifications for dressing and grooming

The possibilities are endless. If you think it’s useful, chances are there are plenty of other people who will also benefit from your idea! Please send your ideas to