News

Rebecca and Kyle Love their “One Rare Boy”

One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds

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Prep Now for Next School Year

Specialized School Plan Tips Shared by Rory Otto

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Clementia Announces Preliminary Results of its Phase 2 Trial in Treatment of FOP

An important announcement from Clementia

The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.

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Dr. Fred Kaplan To Receive NORD's Rare Impact Award

The National Organization for Rare Disorders (NORD) named Dr. Fred Kaplan among its 2017 honorees.

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Two Important Ways You Can Be Part of Rare Disease Day on Feb. 28

Easy ideas for getting involved

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Bingo for a Cure!

Chrissy Flexer Explains the History and Heart of Bingo for a Cure!

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Contribute to the new IFOPA Pinterest Boards

Share your ideas

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Erin Got Her Wish ... And Got Her Wheels!

Putting a disabled teen in the driver's seat

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IFOPA Welcomes New Board Members

We appreciate their involvement

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Focus on Fundraising

March is filled with important fundraising events

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