News

FOP Registry Adds Four New Languages

The FOP Registry launched in four more languages - German, Italian, Portuguese and Spanish

Read more Share

Call for Proposals—IFOPA Competitive Research Grant

The International FOP Association is pleased to announce the 2017 Call for FOP Research Proposals

Read more Share

Brian Harwell Talks Traveling with FOP

Learn how to travel comfortably and be prepared for anything from our very own globetrotter, as shared with the IFOPA by Brian Harwell.

Read more Share

Grantee Profile

IFOPA and Canadian FOP Network Partnering to Fund FOP Research 

Read more Share

The IFOPA Pinterest Board Goes Live

Share your tips.

Read more Share

Happy Mother's Day

Everyone at the IFOPA wishes our wonderful FOP moms a very happy Mother’s Day. 

Read more Share

Give While You Shop

Shop for mom and help the IFOPA

Read more Share

Rebecca and Kyle Love their “One Rare Boy”

One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds

Read more Share

Prep Now for Next School Year

Specialized School Plan Tips Shared by Rory Otto

Read more Share

Clementia Announces Preliminary Results of its Phase 2 Trial in Treatment of FOP

An important announcement from Clementia

The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.

Share

Sidebar Widget

empty_image_16x9.jpg

Donec rutrum ante velit, vel tristique mauris consectetur eu. Aenean a malesuada tellus, at vulputate sem. Donec et nunc vel nisi efficitur fringilla. Aliquam sed lacus ligula. Proin non consequat purus, vel dignissim nunc.


Make a Difference

Donate Connect Fundraise
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter