IFOPA member-inspired music and videos

For more information on any of the items listed, or to make a purchase, please contact the IFOPA office at (407) 365-4194 during business hours (Monday-Friday, 9 a.m.-5 p.m. Eastern Time) or email ifopabooks@bellsouth.net.

Note: Prices do not include shipping or tax (7% sales tax will apply to products shipped to a Florida residence). Shipping costs and tax will be determined per order through the office after order has been placed.

Music

"A prayer for Whitney," is a beautiful song sung by Kassy Ciasulli and Salvatore Arpino. The magical words and music were written by Carol Bayer Sager and David Foster. Kassy used to babysit for Whitney Weldon, a girl with FOP. Her goal now "is to help get her the medical support needed to insure her dreams come true." A CD of the song, generously produced by Kevin Ferd, is available through the Betty Anne Laue/IFOPA Resource Center with a donation of $10 or more, plus $2 shipping and handling. The CD makes a wonderful favor or gift at a luncheon fundraiser, etc. To order the CD or for more information email the IFOPA office at together@ifopa.org.

Videos

The Battle Against FOP, Whitney Weldon's Story - A documentary on FOP member Whitney Weldon, by Sean Devaney (40 min.) May 2003 Cost $10.00

In Search of a Cure - Our very own informational production combining interviews with Drs. Kaplan, Shore and Zasloff, with interviews filmed at the 3rd Symposium of members from around the world. This is the first informational viceo completely produced and owned by the IFOPA. As such, it can be used for fundraising purposes, as well as for education and publicity. It is moving, informative, persuasive and professional. It can be given to doctors, teachers, family members, press people and shown at fundraisers, dinners, Girl Scout meetings, anywhere you are trying to improve FOP awareness. 20 min. (2001) Cost $6.00 U.S.; $9.00 International | Click Here to view an excerpt of the video

Vida 2000 - This is a 20 minute video about FOP featuring five FOP members. They tell when they noticed their first symptoms and how they were diagnosed. Gene therapy and its importance is discussed. This video is in Spanish. It is available in PAL format and VHS format. Cost $10.00

The Bone People and The Skeleton Key - One tape containing the two shows. The Bone People is a 12-minute segment from ABC's 20/20, which aired April 2, 1999. The Skeleton Key is a 50-minute episode of the BBC's Horizon show which aired March 25, 1999. FOR PERSONAL USE ONLY. COPYRIGHT 1999 ABC 20/20, ALL RIGHTS RESERVED. COPYRIGHT 1999 BBC HORIZON, ALL RIGHTS RESERVED. Cost $10.00

The Clock is Ticking - A moving look at the Snow Family's daily life, privately produced, summer 1998 (21 min.) Cost $5.00

A Fighting Chance - A five-part award-winning news series on Stephanie Snow, with highlights from the 1994 FOP Disney trip. From KSBY, Santa Maria, CA. Cost $10.00

Prime Time - A highly insightful segment on FOP at the FOP Symposium in Philadelphia, Sept. 1991, recorded by local Philadelphia show (10 min.) Cost $10.00

Please note that video tape requests must be paid in advance and will be made available only to FOP families unless prior approval has been obtained.

For more donation suggestions, click here.

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