When individuals and families affected by FOP contact the IFOPA, they often want to speak to another family dealing with FOP. To facilitate this process, the IFOPA has created a Mentoring Program, which is designed to provide a family-to-family connection in addition to staff support. Volunteer representatives in the Mentoring Program will be called Mentors; they will either be affected by FOP or be the parent/sibling/caregiver of a person with FOP.

Mentors in this program will serve families in the following ways:

• Listen and share their own experiences with FOP
• Provide a route of communication for families in their region
• Be familiar with IFOPA programs and provide useful information and guidance based on that knowledge

If you need mentoring assistance, please contact the IFOPA or call (407) 365-4194. 

If you would like to be a mentor, please contact the IFOPA or call (407) 365-4194. Even if you do not reside in the United States, please contact us and we will do what we can to find a mentor placement for you.