When individuals and families affected by FOP contact the IFOPA, they often want to speak to another family dealing with FOP. To facilitate this process, the IFOPA has created a Mentoring Program, which is designed to provide a family-to-family connection in addition to staff support. Volunteer representatives in the Mentoring Program will be called Mentors; they will either be affected by FOP or be the parent/sibling/caregiver of a person with FOP.
Mentors in this program will serve families in the following ways:
- Listen and share their own experiences with FOP
- Provide a route of communication for families in their region
- Be familiar with IFOPA programs and provide useful information and guidance based on that knowledge
If you need mentoring assistance, please contact the IFOPA.