Information for Donors
Dear Friends,
The IFOPA takes great pride in our financial efficiency, our accountability to donors, and our transparency. We work to use every dollar contributed as efficiently as possible. Historically, 80-90% of your contributions have gone towards funding medical research and our programs. Over the years our research dollars have supported the effort that resulted in the FOP gene discovery. Our program dollars have funded four (4) International Symposia as well as family gatherings and informational meetings, approximately $35,000 in LIFE Award scholarships, the FOP Connection and Milestones publications, and much more.
In 2010, we will continue to support research -- more important now than ever as the FOP Lab starts to narrow in on potential treatment protocols. We are also developing new and better programs to support our members, with special attention to ensure access to those programs by those outside the United States. These global programs include translation for key documents, a redefined traveling resource center, a Mentoring program, continued E-Learning events and more.
Our pledge to our donors is to continue to keep our overhead at or below the industry average, to maximize the percentage of your contributions that go towards research and our programs, and to spend our dollars wisely so we can support those with FOP while at the same time helping the lab get closer to a treatment and cure.
We invite you to be a part of this herculean effort.
IFOPA Chairman of the Board
To view the IFOPA's Financial Information, click here.
