Donate to the IFOPA in Honor of Joshua Scoble
Joshua Scoble is three years old. He was diagnosed with FOP when he was only three months old. Joshua is like any other three-year-old -- he likes to play, run and giggle -- but he is facing a future that is going to progressively limit his mobility.
Joshua, along with parents Stacy and David, was featured on a segment of NBC’s TODAY Show on October 15.
Click here to watch the TODAY Show segment!
You can help Joshua and others that are battling FOP by contributing to the IFOPA today. Every dollar moves us closer to a cure.
- Make an online donation to the IFOPA in Honor of Joshua Scoble
- Contact the IFOPA to make a donation over the phone
FOP is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles, tendons, ligaments and other connective tissue. Bridges of extra bone develop across the joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine where one normal organ turns into another.
Click here to learn more about the Symptoms of FOP
and an important early sign of FOP.
"It is the cruelest disease that I've encountered," said Dr. Frederick Kaplan, an expert on FOP and newly elected member of the Institute of Medicine of the National Academy of Sciences. "It imprisons people. It's like a molecular terrorist attack."
Thank you for taking the time to learn about this very rare genetic disorder. By unlocking the mysteries of FOP it is unlocking the secrets of common bone ailments, such as arthritis, osteoporosis hip replacements, spinal cord injuries and some heart valve disorders -- your help is critical. Thank you!
