Become an Advocate for the IFOPA
Remember: FOP is serious. For those who suffer from FOP, it is a painful metamorphosis into progressive immobility and a lifelong obstacle to physical freedom.
On April 23, 2006, researchers at the University of Pennsylvania School of Medicine announced they had discovered the gene that causes FOP, a feat that accelerated research efforts as well as the attempts to find a treatment and cure. In addition, the gene discovery will benefit FOP patients world-wide and also will have great implications for millions of patients who suffer from more common bone ailments, such as arthritis, osteoporosis, hip replacements, post-amputation treatment, fracture treatment, certain spinal cord injuries and some heart valve disorders.
PLEASE HELP the children and adults living in bodies encased in bones. They have the same dreams, aspirations and goals as other people but unfortunately face each day with greater struggle.
We need your suppport!