Guidebook Sections

What is FOP?

How did I get FOP?

What does it do to your body?

Does FOP hurt?

Will it get worse?

What things could make my FOP worse?

Are there things that can help FOP?

Can I go to school?

Does anybody else have FOP?

What's the worst thing about having FOP?

Is there anything good about having FOP?

What can I say when people ask me questions?

Who else cares about FOP?

What's the worst thing about having FOP?

The worst thing might be different for each person who has FOP.

- Maybe the worst thing is having a condition that only gets worse, never better.
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Maybe it's having something that's so rare that most people have never heard of it.
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Maybe the stiffness and limited movement is the worst, or maybe it's the pain.

Everybody in the world has some problem sometime in their life. It might be a health problem, or a family problem, or some other kind of problem.

The way for anybody to have a happier life is not to let your problem become so important that you forget all the good things about your life.

 

Go the next chapter Is there Anything Good about having FOP?

Go to the Youth Page

 

© Copyright 2001 International Fibrodysplasia Ossificans Progressiva Association. All rights reserved.
What is FOP? Fibrodysplasia Ossificans Progressiva: A Guidebook for Families © 1995, 1997

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