| Guidebook
Sections What is FOP? How did I get FOP? What does it do to your body? Does FOP hurt? Will it get worse? What things could make my FOP worse? Are there things that can help FOP? Can I go to school? Does anybody else have FOP? What's the worst thing about having FOP? Is there anything good about having FOP? What can I say when people ask me questions? Who else cares about FOP? |
Will it get worse? Yes,unfortunately, FOP does get worse. The "P" in FOP stands for "Progressiva." That means that FOP progresses, or gets worse, as you grow up. The FOP bone that grows in your body doesn't go away, and more FOP bones keep growing as you get older, so it gets harder and harder to move. There
are some things you can do to protect yourself. FOP is an funny disease. Sometimes FOP bones grow when you have the smallest bit of trauma to your body. But sometimes you can get badly hurt and no new FOP bone will grow. There are even times when FOP bones grow and you didn't have any trauma at all. Try
to remember that getting a flare-up is not your fault.
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© Copyright 2001
International Fibrodysplasia Ossificans Progressiva Association. All rights
reserved.
What is FOP? Fibrodysplasia Ossificans
Progressiva: A Guidebook for Families ©
1995, 1997