Can I go to school?

Of course you can. Everybody goes to school.

Because of a law in the United States called "Least Restrictive Environment," kids with FOP should be able to be in regular classrooms at regular schools. The United States government requires schools to be accessible to handicapped people. Public schools have to find ways for all children to learn in school.

I have an aide at school. She's an adult who goes with me all the time. My aide meets the bus when I get to school and takes me to my classroom. She gets out the books I need and sets them up on my desk so I can see them. I turn the pages with a wooden dowel. If my hand is tired I dictate work to my aide. She also stays with me in the halls and the lunchroom to protect me from getting bumped.

I have some adaptive equipment, like a desk with an adjustable slanted top. I put my lunch on a music stand so I can reach it. I use my wheelchair to get around the building. School is one of my favorite places.

Go to the Youth Page