Guidebook Home

Table of Contents

Preface

Introductory Comments

General Questions About FOP

Genetics of FOP

How FOP Affects the Body

Care and Treatment

Activities

Feelings About FOP

Helpful Addresses

Family Resources

Ideas for Independence

Medical Articles

Acknowledgments and Contributions

Family Resources

Many resources are available to people with disabilities and their families. Please visit the IFOPA's database, "Overcoming Obstacles" . It lists resources in the U.S. and abroad for funding, advocacy, legal advice, publications, children, parenting, equipment, and more. If you have additional resources you would like to add, please contact the IFOPA.