What is FOP? A Guidebook for Families


 

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The Circle of Life,
Jack B. Sholund, 1995

Please sign our GUESTBOOK

I had a number of reasons for picking this title for my butterfly painting. The butterfly to me is a symbol of hope and new beginnings. It is a subject that everyone can relate to and everyone has seen a butterfly. Showing the cycle of the Monarch butterfly tells of the changes in life which also occur with FOP.

I picked the detailed work of a butterfly in watercolor to show what can be done after my adapting to FOP. I was a right-handed painter until two years ago when my right elbow locked, forcing me to now do most of my painting with my left hand. This is the first time I have painted an open-winged monarch butterfly using my left hand. I consider this one of the more difficult butterflies to paint. I also wanted to show with my painting that people with FOP can have productive lives.

It's important to have a special interest such as painting is to me. I wanted to mention the wonderful time my parents and I had at the symposium in 1991. It was great meeting new friends and hearing more about FOP. It is a trip I'll never forget. I'm sure the 1995 symposium will be just as successful and my best wishes to everyone.

Jack B. Sholund
Bigfork, Minnesota

FOP: Patterns of Progression Emergency Guide
A Medication Guide Surgery and FOP
Immunizations in Children Who Have FOP FOP and Life-threatening Emergency
Viral Influenza and FOP Flare-ups Falls in People With FOP
Dental Precautions for People Who Have FOP Medical Journal Abstracts
Dental Guide for People Who Have FOP Obtaining Tissue Specimens During Emergencies

 ...Comments

Authors:

Rachel B. Wagman, Sharon L. Kantanie, and Frederick S. Kaplan, M.D.

Editor-in-Chief:

Sharon L. Kantanie

Associate Editor:

Rachel B Wagman

Medical Editors:

Frederick S. Kaplan, M. D. and J. M. Connor, M.D.

Scientific Editors:

Michael S. Zasloff, M.D., Ph.D., and Eileen M. Shore, Ph.D.

 

 

 

 

Table of Contents

ACKNOWLEDGEMENTS AND CONTRIBUTIONS

PREFACE

INTRODUCTORY COMMENTS

GENETICS OF FOP
HOW FOP AFFECTS THE BODY
CARE AND TREATMENT
ACTIVITIES
FEELINGS ABOUT FOP
HELPFUL ADDRESSES

FAMILY RESOURCES

IDEAS FOR INDEPENDENCE

MEDICAL ARTICLES

FOP: Patterns of Progression, Frederick S. Kaplan, M.D. and Sharon L. Kantanie

A Medication Guide for Patients Who Have FOP, Frederick S. Kaplan M.D. and Michael S. Zasloff, M.D., Ph.D.

Immunizations in Children with FOP: Do's, Don'ts, and Dilemmas, Frederick S. Kaplan, M.D. and Michael S. Zasloff, M.D., Ph.D.

Viral Influenza Associated Flareups of FOP

Minimizing Risk: Dental Precautions for People with FOP, Frederick S. Kaplan, M.D. and Sharon L. Kantanie

Dental Guide for People Who Have FOP

Guide for Emergency Situations Involving People with FOP, Frederick S. Kaplan, M.D.

Surgery and FOP: When to Say Know, Frederick S. Kaplan M.D., Michael Zasloff M.D., Ph.D., Randolph Cohen, M.D., Jeffrey Tabas, M.D.

FOP and Life-Threatening Emergency: What to Do About Anesthesia, Frederick S. Kaplan M.D. and Michael Zasloff M.D., Ph.D.

Catastrophic Falls in People Who Have Fibrodysplasia Ossificans Progressiva, David L. Glaser, M.D., David M. Rocke, Ph.D., Frederick S. Kaplan, M.D., and Sharon Kantanie

Medical Journal Abstracts-Summaries of medical journal articles

Obtaining Tissue Specimens During Emergencies, John Cali, Frederick S. Kaplan, M.D., Eileen Shore, Ph.D., and Michael Zasloff, M.D., Ph.D.

 

© Copyright 2001 International Fibrodysplasia Ossificans Progressiva Association. All rights reserved.
What is FOP? Fibrodysplasia Ossificans Progressiva: A Guidebook for Families © 1995, 1997