Is there anything good about having FOP?

People can learn and grow from every experience they have. Even though you wouldn't choose to have FOP, your world will be shaped and even strengthened by your experiences with FOP.

Many good things have happened to me because of FOP. I've made friends from all over the United States and the world in the International FOP Association.

This year I have a secret pal who lives in Australia! I've gone on vacations to see my friends in the IFOPA. In 1993 we went to an IFOPA reunion in Nashville, Tennessee. In 1994 we went to Disney World.

I've been to Philadelphia for the FOP Symposiums and for appointments with Dr. Kaplan and Dr. Zasloff.

When I was in Philadelphia I learned a lot about the historical things that happened there. In 4th grade I had to do a current events report from an article in a newspaper. Everybody in my class used the local newspaper, but I used the Philadelphia Inquirer. That newspaper was founded by Benjamin Franklin! I get special attention because I have FOP, and attention always feels good.

I have some extra services at school, like a special gym class with just 4 other kids. Maybe because I use a wheelchair, everybody recognizes me. Sometimes people know my name when I don't know theirs. Several kids who have FOP have been in the newspaper and on TV.

I'm also pretty good at going to doctors and hospitals. It's not so scary because I go pretty often. And I've learned a lot of words that other kids don't know, like genetic, goniometer, physical therapy, and fibrodysplasia ossificans progressiva.

Having FOP has also made me more understanding of other people who are sick or who have disabilities. I'm not afraid to talk to someone who uses a wheelchair the way some kids might be.

It seems like FOP has made me pretty mature for my age. When I was in the first grade, my teacher said that of all the kids in my class, I had the best self esteem. She meant that I really knew who I was and that I liked myself. Maybe it's the same for you. Kids who have FOP have experiences and things to think about that other kids don't have.

Go the next chapter What Can I Say When People Ask Me Questions?

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