"Starry Night" by Vincent, Age 12
(and Vincent Van Gogh)

Please sign our GUESTBOOK

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This book was written by Sarah Steele and her mother Marilyn Hair. The "I" voice in this book is the voice of Sarah Steele.

Recommended for ages 8-12. For younger children with adult supervision.

If you count how many times one of these words is in this book...probably, usually, sometimes, some, seems to, often, might, could...it would "probably" be 100 times. That's because every person who has FOP is different. Flare-ups aren't all the same. Some people grow more FOP bones than others. But even though we're different in some ways, we have a lot in common.

The authors hope that this book answers some of your questions and gives you ideas about where to find more help as you adjust to living with the mysterious condition we call FOP.