What can I say when people ask me questions?

You can tell people that you have FOP and that it's a condition where extra bones grow in places they shouldn't grow.

You can say your arm doesn't move because there's extra bone in the way.

If someone says they've never heard of it, you can tell them it's a rare disease. You can say that you were born with it.

Your friends and teachers may have many questions. If they have never heard of FOP, they may want to learn more about it.

But there may be times when you don't feel like explaining.
It's OK if you don't want to talk about it. If someone you don't know asks you questions, you can say something short like, "My arms don't move." or "I have a medical condition."

People aren't trying to embarrass you when they ask questions, but if you feel uncomfortable you don't have to talk to them.

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