Does anybody else have FOP?

FOP is a very rare disease. Out of 5 billion people in the world, about 2,500 people have FOP.

That's one out of every 2 million people.

If a football stadium holds 100,000 fans, you would have to fill 20 stadiums before you found one person who has FOP.

That probably means that no one else in your school or even your whole city has FOP.

It may mean that you are the only other person with FOP who goes to your doctor.Your friends and teachers may have never heard of FOP. Sometimes you and your family will have to explain what it is.

That might make you feel like you're pretty much alone.

Not to mention that some of the things you're learning about FOP sound really scary.

But there are other people you can talk to and even meet who have FOP.

You can share your feelings about having FOP with people who know just what it's like. You can ask for ideas about how to make it easier to live with FOP.

Go the next chapter What's the Worst Thing about Having FOP?

Go to the Youth Page