Catalog of FOP Resources
Self Help Aids
Anything that aids independence in the bathroom (washing/toileting/grooming/teeth), bedroom and dressing area (including clothes), dining room (drinking, eating), kitchen (cooking) and living room (reachers) and more.
Armpit Cleaning - Personal Swab Kit
These wipes were originally made for cleaning the contracted fist of someone with CP, stroke, etc. Jeri, the mother of Daniel, a boy with FOP, found them in the Alimed Catalogue. After speaking with Alimed’s product support people, she decided to try th ...
Bamboo Tongs
Many people with FOP use tongs for eating, holding, and reaching. Unlike the more common metal ones, however, these 10” bamboo tongs are very light and not as noticeable as the more child-friendly Zoostick described elsewhere. They can be used to reach ...
Bedside Helpers – SuperPole & SuperPole with Super Bar
www.dynamic-living.com/
If you need some assistance getting out of bed, there are several gadgets available to help you do so safely and independently. Some attach to the bed and some attach to the ceiling and floor, offering support for a longer distance. The Basic Superpole fr ...
Bedside Helpers – The Smart Rail
www.dynamic-living.com/
There are many gadgets on the market designed to help you get out of bed and stand up safely and independently. Some do more than others, but the goal is to have you standing on your own two feet as safely as possible. The Smart Rail is a unique bed assis ...
Blow Dryer Holder
www.homefocuscatalog.comThis item is a plastic bracket that suction mounts to the wall etc and holds your hair blow dryer in perfect position so you can stand in front of it and dry your hair without needing to use your hands. If you can, you can use both hands to style your hai ...
Brush with Adjustable Long Handle
This item is a hair brush with a long, plastic handle that is adjustable in two places so the brush can be placed at any angle. The long 16” handle allows it to even reach the top of the head. Sharon, a woman with FOP, wrote that “This was the only ex ...
Brush – Long Handled - Homemade
Sources/Directions: Pamela says, “This brush is made very easily with a piece of conduit pipe and a vent brush. You grind down the brush to fit into the pipe and secure it with a small screw. The whole thing is about 2.5 feet long. It could be longer, a ...
Brushes & Combs with Long Handles
www.ncmedical.com
These tools have a 14 ½” long contoured handle made of plastic. Whether it is good for any given individual with FOP, however, depends on the position of the shoulders and arms. These grooming aids have nonslip rubber handles that feel comfortable in t ...
Chopper Jr.
www.Amazon.comThe Chopper Jr. is a small food processor by Black & Decker. It holds one cup or less of food. Elaine says the size is great for one person and it has only one button to turn on. You can make food lumpy or very creamy just by how long you hold the button ...
Clamp It
www.dynamic-living.com
Clamp-It is an adjustable clamping device that can be used to hold an item in a fixed position. It is a wonderful help when doing crafts - use it for holding a knitting needle or crochet hook. It is also a great tool for single-handed people or folks that ...
Clamps - Surgical Clamp
For a tight grip on things, Michelle, a young woman with FOP says, “I have a pair of surgical clamps and I use them when I need to reach, like maybe my forehead, and I need a firm grasp. They lock and clamp shut tightly until unlocked. I use them to gra ...
Clamps for Holding Stuff - Mother's Third Arm
www.abilitations.com
In order to keep items close enough for Daniel, her son with FOP, to grab on his own, Jeri found a “Mother's Third Arm” especially helpful. “Mother’s Third Arm” is a cup holder on a long bendable arm. It was originally invented as a baby product ...
Clamps for Holding Stuff – Big Bend Clamp
www.abilitations.comWhen researching sources for the Mother’s Third Arm clamp described elsewhere, Jeri found the “Big Bend Clamp,” which seems more adult oriented and heavy duty. Abilitations catalogue says that this clamp is an extra arm where you need it and strong ...
Contact Lens Helper
Heather, a woman with FOP, submitted this gadget. She created a fake finger as described below and says, “I just pick this finger up with a pair of stainless steel serving tongs, angle it towards my eye, and pop it [the contact lens] in.” Sources/ ...
Cutting Board - Adaptive
www.ncmedical.com
Very often, adults with FOP become more comfortable using one hand or the other at a time. To assist one-handed cooks, Functional Solutions has a Formica cutting board designed with wooden corner guards to keep food from falling off the edges as you work ...
Disabled Children's Relief Fund (DCRF)
www.dcrf.comDisabled Children's Relief Fund (DCRF) is a non-profit 501(c)(3) organization providing children with assistance to obtain wheelchairs, orthopedic braces, walkers, lifts, hearing aids, eyeglasses, medical equipment, physical therapy, and surgery. Blind, D ...
Dowel Stick Helper
Jack, an adult with FOP, created this tool to extend his reach within a short distance. He uses it to remove his glasses, put them on, reach for something close by on the table, scratch at itch, etc.
Sources/Directions: Buy a dowel (a relatively thin ...
Dressing Stick - Homemade
Cathy, an adult with FOP, says that a long time ago she bought a dressing stick like the one pictured here. When she was unable to find it again, she had it made. It is a ½” thick dowel rod with a 3/8” long high-density polyethylene bar thru the end ...
Dressing Sticks - Manufactured
www.ncmedical.comPeople have written in that they try many tools as they accommodate FOP, but eventually they settle on one that they use for many things. For Chad Campbell, it’s his dressing stick. Although its primary use is to help someone with limited reach pull up ...
Drink-Aide
www.drink-aide.com
Drink Aide consists of an insulated water bottle, a vibration resistant flexible drinking tube and a universal clamp. The universal clamp fastens the insulated water bottle to a wheelchair, bed or any other convenient location. This hands-free innovation ...
