Catalog of FOP Resources
Safety
Car seats, fire department letter, helmets, ice packs, Medic Alert Emblem, emergency cards, slipping prevention and more.
Booster Seats –Britax Star Riser & Bodyguard
www.britax.com.
When Peter’s son, Daniel, outgrew his car seat and needed more support and protection than regular boosters provided because of his FOP, Peter researched what was available and found the Britax Star Riser booster seat. At the time, it was the only padde ...
Fire House Letter
Peter and Jeri recognized very early that once the shoulders of their son with FOP become fused, he could not crawl anymore. This would not have been a large concern, except for the fact that firefighters suggest that you crawl under the smoke when exitin ...
FOP Emergency Card
n order to help its members be prepared for emergencies, the IFOPA created the FOP Emergency Card as a quick source of vital FOP information. It contains basic information about FOP (that the person’s joints may be fused, that tissue trauma accelerates ...
Hard Shell Helmet with Face Bar
www.sammonspreston.com
All young children toddle and fall down. That is why they are called “toddlers”. Most children outgrow it as they get used to their heavy heads, and most children do not have serious consequences from these “normal” falls. For a child with FOP, th ...
Hip Protector
www.footsmart.com
Intended originally to prevent the hip injuries of older folks, this item is also able to protect the sore and stiff hip joints of those with FOP. The Hip Protector from Footsmart fits comfortably under clothing and adds a layer of foam protection to the ...
Medic Alert Emblem
Jeri and Peter wanted to protect Daniel, their young son with FOP. Jeri says, “FOP is so rare that it is unlikely that emergency personnel, such as ER doctors and ambulance attendants, will have heard of it, yet alone know the proper ways to care for a ...
Safe Stepstool - The Learning Tower
www.sammonspreston.com
Jeri and Peter wrote, “When our son, Daniel, was small and more likely to fall off of things (including his feet), we looked for a step stool with a handle but never found one that was stable enough for a child with FOP. They have since found this terri ...
Safety Surface - Foam Interlocking Floor Mats
Although the parents of Daniel, a boy with FOP, realized that they couldn’t pad the world, they decided that they could pad part of their little corner of it. They found these Foam Interlocking Floor Mats and put them on the floors in the family room, d ...
Safety Surface - TechnoMats
www.abilitations.com/products/technomats.jsp.
TechnoMatsTM , originally designed as tumbling tracks in rehabilitation settings, could also be used for padding playrooms, basements, and other places frequented by a person with FOP. These mats are sold in a variety of sets (see below) and are portable, ...
The Therma-Kool Ice Packs by Nortech
www.nortechlabs.comAs every one involved with the IFOPA knows, FOP is accelerated by trauma. Since there is no official post-trauma FOP treatment yet (!), our members rely on ice packs following an injury. FOP parents, Jeri and Peter, use the Therma-Kool Ice Packs by Nortec ...
“No Flat” Tire Protector
Nancy, an adult with FOP, says that she has had experience with both pneumatic and solid rubber wheelchair tires. “It is definitely a bumpier ride on solids but it does beat getting a flat, which we have had some terrible times with. But if you have pne ...
