Catalog of FOP Resources

Bandaids and Blackboards

For parents, teachers and friends. Even the navigational links are fun.

Disability Rights Education and Defense Fund (DREDF)

Operates a hotline funded by the Department of Justice providing technical assistance on the ADA.

Ed Law

A resource of information about special education and disability law; provides a list arranged alphabetically by state of attorneys who represent parents of children with disabilities; also has texts of statutes, regulations, judicial decisions, OSEP Moni ...

Exceptional Parent

Monthly magazine for parents of children with special needs and chronic health issues. EP has regular columns, feature stories by parents and professionals, and photos. Topics include camp, education, empoyment, equipment, products, success stories, trave ...

Family Resource Center on Disabilities

Program based in Chicago whose mission is to improve services for all children with disabilities. They will refer you to a Parent Training Information Center in your state.

Family Village

Although developed for persons with cognitive and other disabilities (and their families & service providers), this site has much information that is applicable to those with FOP; Family Village has informational resources on specific diagnoses, communica ...

Family-to-Family Health Information Centers

Run by experienced parents, and supported by private and public funds, Family Voices has helped many of our volunteer Network members, all of them parents, develop Family-to-Family Health Information Centers in every state around the country.

Federal Interagency Coordinating Council

Families coping with children with disabilities and the resulting overwhelming financial burdens may find an ally in the FICC, an agency created to coordinateservices (such as early intervention, Head-start, hospital, case management oversight, medicaid, ...

National Grassroots Network of Families and Friends Spe...

National Information Center for Children and Youth With...

Funded by the National Dissemination Center for Children with Disabilities, provide information about IDEA (the US Special Education law), No Child Left Behind and all aspects of special education.

PACER Center

Parent Advocacy Coalition for Educational Rights. A National Center based in Minnesota. PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilitiesand their families. Based on the concept of parents h ...

Parent to Parent-USA

P2P-USA is an alliance of statewide* Parent to Parent programs, providing emotional and informational support to families of children who have special needs most notably by matching parents seeking support with an experienced, trained 'Supporting Parent'. ...

Parent Training & Information Centers by State

These programs are funded by the Office of Special Education Programs in the US Department of Education; the purpose of these centers is to help provide training & information to meet the needs of parents of children with disabilities living in the area s ...

Pediatric Pain

This site seem primarily related to cancer situations, but some of the information is more generally relevant, especially the support, explanation, and suggestions areas. Warning to parents, it can be heartbreaking.

SNAP* Special Needs Advocates for Children

A national organization providing information, education, advice and referrals to US families; its focus is the need to plan for the future of a child with disabilities, including estate & other financial planning.

Special Education Advocate

Free E-mail newsletter on legal & legislative issues relevant to the special ed. system & various learning disabilities.

Starbright Foundation

"Brings together the fields of entertainment, technology and pediatric healthcare to create innovative media-based programs that help seriously ill children and teens better cope with their disease adn enhance their quality of life."