Information for Caregivers

It is extremely important that any relationship between a person with FOP and his or her caregiver becomes a partnership.

To help caregivers become familiar with FOP, we offer the following references.

• The Medical Management of Fibrodysplasia Ossificans Progressiva: Current Treatment Considerations
• Support Guidebooks
• FOP FAQ
• Mentoring Program
• Videos: FOP Facts & Insights
• Catalog for FOP Resources

For additional information, please contact the IFOPA office directly or contact the IFOPA's medical advisor, Frederick S. Kaplan, M.D., or his assistant Kay Rai at the University of Pennsylvania School of Medicine at 215-349-8726 or via email.