Information for Caregivers

It is extremely important that any relationship between a person with FOP and his or her caregiver becomes a partnership.

To help caregivers become familiar with FOP, we offer the following references.

For additional information, please contact the IFOPA office directly or contact the IFOPA's medical advisor, Frederick S. Kaplan, M.D., or his assistant Kay Rai at the University of Pennsylvania School of Medicine at 215-349-8726 or via email.