What is FOP Advocacy?

FOP moms show their team spirit with Sen. Richard Santorum (R-Penn.) and Sen. Craig Thomas (R-Wyoming).
Advocacy involves individuals who are committed to influence positive change in their lives, communities and elected governments by making their personal stories and opinions known. They seek these changes by getting involved and taking action in order to make a difference in the lives of those afflicted with FOP and their families. Getting involved in advocating for the IFOPA may mean taking any of the following actions in contacting your local, state or federal government representatives:
  • Making telephone calls
  • Writing letters
  • Sending emails
  • Visiting your elected representatives in Washington, DC, or in your home state

As an advocate, you represent all patients with FOP. Because you are a constituent and a registered voter in your legislator's home district and state, your opinions are important to them!

So if you haven't yet contacted your United States or State representatives, please do so, using the resources on this page for help.

Back to main Advocacy page >>

 


 More advocacy and information:
  FOP Advocacy in Action
  What is FOP Advocacy?
  FOP Facts in Brief Sheet
  IFOPA Facts in Brief Sheet
  FOP Symptons
  FOP FAQ
  Narrative on FOP
  FOP Makes Washington Plea
  Blog on latest efforts
  Tips for writing
  Sample letter
  Overcoming Obstacles: More     Advocacy and Government info.
  Other ways to help

 In This Section:
  Donate
  Fundraise
  Volunteer
  Advocacy
  IFOPA Store

 For more information:
  Browse Resource Center
  Newsletters
  Overcoming Obstacles

Get Adobe's Acrobat!

 

 
The International FOP Association does not provide medical advice. The material contained in this web site is provided for informational purposes only. It should not be used for diagnostic or treatment purposes. Please consult your physician before acting on this or any other medical information.
Click here for a listing of our website policies, procedures and legal issues.
International FOP Association · PO Box 196217 · Winter Springs, FL 32719-6217
407-365-4194 · E-mail together@ifopa.org